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Sunday, 19 April 2015

Poetry

Sometimes words come into my mind.  Most of the time I forget these far too quickly, but today they merged into a poem.


It is not right.

I could say it is not fair, but life never is.

I should be out in the sunshine,

sharing the wind and the light.

I should be flying down a lane on 2 wheels,

or running across the mountain,

or urging my pony up a bridleway.

I am not though and it is not right.

There are people living a half life that comes

from laziness and lack of spirit.

I live a half life because of my damaged body.

My brain and spirit are mostly bright,

but my body fails me daily.

A fog of depression and sadness threatens to cover me,

and I fight it.

My spirit is strong and I search for my place in this world.

I am not who I want to be - frustration is not a big enough word.

Tears flow too often.

I keep getting up.

I keep trying to smile.

I keep moving my body and accepting the pain.

It is not right though.

Sunday, 12 April 2015

Spring Clean

I really need to start writing down ideas for blog posts. Throughout the day I often think of a topic/question or whatever, and then literally within seconds it has gone out of my brain.

I am now sitting on the sofa with my laptop (it stopped working a few weeks ago and went off to be repaired), watching the F1 and catching up with the interviews/blog posts I have been planning for ages.

I intend to get more variety into this blog in the coming weeks/months. Yes, a lot of it will be related to Fibromyalgia and Chronic Pain/Fatigue in some way, but I have other things in my life that need writing about.

I normally type blog posts directly into Blogger, but experimenting with using Wordpad (I am not willing to pay for full MS Office!) and then copying/pasting. A more relaxed way to write and hopefully I will get more posts drafted ready to schedule each week (never done scheduling before, so wish me luck!).

I have been doing some reading into Social Media and how I can use it more effectively
Social Media bookazine from Mollie Makes.  This is something that I am fascinated with - and wish I had picked up on its importance earlier. I do feel that I have been left behind slightly, but now is the time for me to learn more and fully use its many aspects. Therefore, you will be seeing changes in how I blog in the near future. I have had several positive comments about my blog layout, so want to keep it clear and simple - but it is getting rather 'tired' now. Time for a spring clean!

If anyone has any ideas for a blog post, a question they want answered etc, get in touch.

Now for one of my random photos, as I don't want you to get bored reading my rambling!

Robbie the pony and Doris the donkey -
enjoying having another shed to relax in.
(As a spring calving herd, most of the cows have now calved
and the yard has been emptied.)
 

Wednesday, 4 March 2015

WOYWW 300

A milestone is reached today in the wonderful world of WOYWW.  How could I not join in?  Go on over to Julia's Stamping Ground for more details and a long list of fellow-'deskers'.

Not much crafting going on in my craft room today, so I have some of my latest stash acquisitions (ie internet shopping) on display.

I have been saying for a while that I must dust down my sewing machine, and when the latest Cross Patch show came on Create & Craft (apologies for all the links, but I know people will be asking me for details on these!), I found myself ordering some of the goodies.  The larger bag will be for me, the smaller one will be a Xmas pressie (deadline then!) and the door hanger is for our granddaughter.



I have done a fair bit of digital crafting this week, including starting on the path of learning another software, Serif DrawPlus, so I can design logos etc.

Thank you for all the lovely comments on my WOYWW post last week.  I hope to visit as many as possible in the next few days.

Ali x

ps  Huge thanks for those who have offered to make something for my new Etsy shop, raising funds for Fibromyalgia research, especially as we approach International Awareness Day on 12th May.  I will be setting up the shop next week and there is plenty of room for more items - I just ask for purple and butterflies to be included somewhere; any crafting is welcome. 

Wednesday, 25 February 2015

WOYWW 299

So much of my week has been taken up with social media - Facebook, Twitter, Pinterest and Google+ - helping to raise awareness of Fibromyalgia.  It is the International Awareness Day on 12th May and I am starting an Etsy shop to sell items made by Fibro sufferers and their supporters.  If anyone would like to contribute, get in touch.  Anything is welcome - as long as there is purple and butterflies somewhere on it.

Now I put my crafty blogging hat on and join in (very late) with the wonderful weekly tour around so many wonderful crafty workspaces.  If you want to join in, take a trip over to Julia's Stamping Ground.  As you can see from this blog title, we have very nearly reached the milestone of 300 weeks.  I have not been involved from the beginning!

I am showing off my latest finished needle felting project - the rabbit which you saw last week.  He (yes, he likes purple and pink!) has clothes now - and arms.  I am going to add some fluffy eyebrows, as I think that he would suit them.



In my craft room I am finishing off getting 20 cards ready for a NSPCC event - just need to sort out envies and poly bags. 

I will take a late tour around now. 

Happy WOYWW to everyone.

Ali x

Friday, 20 February 2015

My new purple friend

I have a new friend who spends nearly 24 hours a day with me.  This new friend is my purple Garmin vivofit wristband, which Rich bought me for Xmas.  I had been interested to have one, so that I could see exactly how active I am during the day and also track my sleep patterns.



There are plenty of general reviews about how comfortable it is, how easy it is to set up etc - but I will concentrate on the specific values to those with a chronic health condition.

It is very interesting to see how much deep sleep I have had each night - or how little deep sleep often in my case!  I can edit it in the morning to show my waking mood - and so far I have had the blue face (OK) for 83.3% of the nights and 16.7% for the red face (bad).  There are no green faces (great)!

As is normally the case with Fibromyalgia (if there is a normal ?!), there is no clear correlation (I did Statistics at O Level - back in 1987!) between how I sleep at night and my activity the day before, or how the next day is affected.  I have noticed that in the past week I seem to have gone back to my old habit of less sleep at night and waking early with increased pain (28.6% bad waking mood in the past week), and checking on my activity (which is the number of steps I take) I see that I am moving more.  I wonder whether this is because the days are getting longer - so I am spending more time outside on the yard and also walking the dogs.  

Week commencing 26th January - 81,903 steps.
2nd February - 84,972 steps.
9th February - 95,137 steps.
Already this week I have done over 70,000 steps.

Yes, I have Fibromyalgia - and I still move a lot!  With the ponies/donkey, dogs, big house and a generally active mind (that means I do not want to sit and watch Jeremy Kyle!), even with regular rests I am still  covering many miles each week (around 6 miles per day).

I complain all the time about winter and how it increases my pain/stiffness, but perhaps it is actually the time when I spend more time indoors and rest my body, and therefore I sleep better at night?  It is still winter, but the lighter evenings mean that I am enjoying being outside sorting out the animals and I will generally potter about finding jobs to do.  I don't always experience more pain/fatigue because of this, but it may affect my sleep patterns.

Who knows??!!



I will continue to monitor and assess whether there are any patterns.  However, my main aim is to get more and better quality sleep, so I will be turning off this laptop soon and getting to bed at a reasonable time.

If any of my readers have a wristband tracker-thingy, let me know how you are getting on with it - and whether you have seen any patterns between your activity and sleep.

Wednesday, 18 February 2015

WOYWW 298

Another mid-week is upon us, and I am actually sitting down with my laptop and getting some blogging done.  You would think that with not working or having any kids I would have plenty of spare time, but it doesn't seem to work out that way.

What is On Your Workdesk Wednesday is a special occasion when crafters from all over the world show off their workspaces.  You can join in at Julia's Stamping Ground.

I did manage to do some papercrafting yesterday (I am making cards for family and also for an NSPCC sale), but my old body is not up to dragging up the stairs to take a photo of my desk, so my other work area (the sofa) will have to do!  I am still very addicted to needle felting.  I finished my first project, Darren the Daxie - and now I am working on a cute rabbit.

Here is the sofa before I sit on it -


(The fab Wool Buddies book - I highly recommend this.  Lots of projects and tips.   Tape measure, finger guard, felt pad ...)

Here is Darren -


(A bit fuzzy and wobbly - but so cute.)

Here is the start of my rabbit -

 
I hope that everyone is well.  I will be touring around a few blogs later.
 
Ali x

Wednesday, 21 January 2015

WOYWW 294

A very quick blog post, as I should be making/eating lunch/sorting out laundry/turning out ponies etc, etc!

We all join in on Wednesdays to share details of our workdesk/crafting projects.  Go to Stamping Ground for more details.

I am not spending so much time in my craft room at the moment, as it is not the warmest room in the house, so my photo today is of my latest addiction - needle felting.

I bought a kit to make a Xmas present for my mum (she loves dachshunds), but never got round to starting it until this week.  Now I see what all the fuss is about!  Really enjoying the process - and already planning my next projects, including doing some of my own designs.  It is very good for making me rest and distracting me from my pain.



I am making his tail now, and then it is the ears/feet/face to finish.

The only thing I have new on my craft desk is my washi tape storage solution - a wire basket I found in a local shop.

 
Hope that everyone is ok.  I will find some time later on to have a tour around other workdesks.  It is good that I am so busy, but there really aren't enough hours in the day to get everything done.
 
Ali x